↡↡ Children in palliative medicine: An overview
Book Information: (2009). In Hanks G, Cherny NI, Christakis NA, Fallon M, Kaasa S & Portenoy RK (Eds.). Oxford Textbook of Palliative Medicine (4th edition). Oxford: Oxford University Press, 1301-17.
↡↡ The Madison Clinic: Evaluation of a collaborative outpatient paediatric palliative care clinic
Journal Information: (2009) Paediatrics & Child Health, 14(6), 379-384.
A multidisciplinary outpatient clinic at a children’s hospital was created to enhance and expand the inpatient palliative care services available to families of children with life-limiting conditions – this clinic is supported and staffed by a children’s hospice. The present article reports on the first 29 months of operation of the paediatric palliative care clinic.
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↡↡ Considerations for ethics in multisite research in pediatric palliative care
Journal Information: (2009). Palliative Medicine, 23 (3), 274-5.
A letter to the editor suggesting that the ethical approval process be streamlined for multisite research. The letter also brings to light that Research Ethics Boards (REB) have less experience with research in pediatric palliative care, and that it is crucial for palliative pediatric researchers to educate REBs on the special elements of palliative care research and the issues associated with researching in the area.
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↡↡ Pediatric enteral feeding intolerance: A new prognosticator for children with life-limiting illness?
Journal Information: (2009). Journal of Palliative Care, 25 (3), 213-7.
Children with chronic life-limiting illness are prone to feeding difficulties. This is managed by strategies that include gastrostomy or jejunostomy tube feeds. A subgroup of enterally fed patients who develop progressive intolerance to their feeds have been identified. A case report is presented along with the findings from a retrospective chart review to better understand key elements and to suggest further studies to better elucidate etiology and management for this patient population.
Click here for abstract.