↡↡ Pediatric palliative care research in Canada: Development of a New Emerging Team
Authors: Straatman, L., Cadell, S., Davies, B., Siden, H., & Steele, R.
Journal Information: (2008). Paediatrics and Child Health, 13 (7), 591-594.
In 2004, the Canadian Institutes of Health Research provided funding for 9 New Emerging Teams to extend research in palliative care. Transitions in Pediatric Palliative and End-of-Life Care was a research program developed under this funding and was the only New Emerging Team with a pediatric focus. This article provides an overview of the development, research, challenges and future directions of the palliative pediatric care research team.
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↡↡ Pediatric palliative care research in Canada: Development of a New Emerging Team
Exploring families’ transition to a Canadian pediatric hospice. Part II: Results of a pilot study
Authors: Steele, R., Derman, S., Cadell, S., Davies, B., Siden, H., & Straatman, L.
Journal Information: (2008). International Journal of Palliative Nursing, 14 (6), 287-295.
In the second part of a pilot study the experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children’s Hospice (CPHC) in Canada. The perspectives of non-hospice health care professionals involved in the child’s care are explored. Data were gathered through audio-taped, semi-structured interviews. The prospect of respite care was usually the deciding factor in applying to the hospice. Parents reported benefits of hospice respite for themselves and the whole family. Recommendations for practice and future research are offered, including discussion about the feasibility of the study procedures.
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↡↡ Research priorities in pediatric palliative care: A Delphi study
Authors: Steele, R., Bosma, H., Fletcher-Johnston, M., Cadell, S., Davies, B., Siden, H., & Straatman, L.
Journal Information: (2008). Journal of Palliative Care, 24(4), 229-239.
The goal of this project was to achieve consensus among palliative care practitioners and researchers regarding the identification of pertinent lines of research. Four priority research questions were identified: What matters most for patients and parents receiving pediatric palliative services? What are the bereavement needs of families in pediatric palliative care? What are the best practice standards in pain and symptom management? What are effective strategies to alleviate suffering at the end of life?
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↡↡ Exploring families’ transition to a Canadian pediatric hospice. Part I: Planning a pilot study
Authors: Steele, R., Derman, S., Cadell, S., Davies, B., Siden, H., & Straatman, L.
Journal Information: (2008). International Journal of Palliative Nursing, 14 (5), 248-56.
This article describes the rationale for planning and conducting a qualitative pilot study about families’ transition to a Canadian pediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate around the term ‘hospice’ versus ‘palliative care’; the different and unique needs of children requiring a palliative approach compared with adult hospice patients; and information about planning and beginning the study, including the rationale for a pilot, details about the study site, recruitment and procedures, and data collection and analysis.
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↡↡ A report on location of death in paediatric palliative care between home, hospice and hospital
Authors: Siden, H., Miller, M., Straatman, L., Omesi, L., Tucker, T., & Collins, J.
Journal Information: (2008). Palliative Medicine. 22(7):831-4.
This retrospective study analysed data for 703 children who died from 2000 to 2006 to examine where children with a broad range of progressive, life-limiting illnesses actually die when families are able to access hospital, paediatric hospice facility and care at home. Results suggest that the choice of families for end-of-life care is equally divided amongst all three options. Given the increasing numbers of children’s hospices worldwide, these findings are important for clinicians, care managers and researchers who plan, provide and evaluate the care of children with life-limiting illness.
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