↡↡ Pediatric palliative care in Canada
Authors: Widger, K., Cadell, S., Davies, B., Siden, H., & Steele, R.
Book Information: (2012) In Knapp, Madden & Fowler-Kerry (Eds.) Pediatric Palliative Care: Global Perspectives. Springer Publishing, 301-321.
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↡↡ Changes in parents after the death of a child from cancer
Authors: Gilmer, M. J., Foster, T.L., Vannatta, K., Barrerra, M., Davies, B., Dietrich, M.S., Fairclough, D.L., Grollman, J., & Gerhardt, C.
Journal Information: (2012) Journal of pain and Symptom Management
This study used interviews with bereaved parents and siblings to examine changes in parents during the first year after the death of a child from cancer.
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↡↡ Death & grief on-line: Virtual memorialization and changing concepts of childhood death and parental bereavement on the Internet
Authors: Stephenson, P., Mitchell, L., Cadell, S., & Macdonald, M.E.
Journal Information: (2012) Health Sociology Review
‘Virtual memorials’ intended to memorialize the lives of children imply significant shifts in the conceptualization of death, particularly for grieving parents. Created by parents in memory of their deceased children, on-line memorials constructed using templates reflect strong cultural beliefs about the nature of childhood deaths, grief and the development of a kind of digital afterlife. Virtual memorials create a new social value for the deceased, and shift death and bereavement from private into more public experiences.
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↡↡ Informing social work practice through research with parent caregivers of a child with a life-limiting illness
Authors: Cadell, S., Kennedy, K., & Hemsworth, D.
Journal Information: (2012) Journal of Social Work in End-of-Life & Palliative Care
In the face of such adversity, parent caregivers can also experience positive changes caring for children with even the most serious conditions. This article presents results from a research study of post-traumatic growth in parents who are caring for a child with a life limiting illness, providing a unique and important platform for parent caregivers’ experiences that can inform the work of social workers and other pediatric palliative care professionals.
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↡↡ Paediatric palliative care: A survey of paediatricians and family practitioners
Authors: Straatman, L., & Miller, T.
Journal Information: (2012). BMJ Supportive and Palliative Care
This study investigates experience with and confidence in providing paediatric palliative care of family/General Practitioners (GPs) and paediatricians. The learning needs, topics for education and the mode in which they want to learn were surveyed. Also, their methods for coping/self-care was measured.
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↡↡ A review of pediatric palliative care service utilization in children with progressive neuromuscular disease who died on a palliative care program
Authors: Ho, C., & Straatman, L.
Journal Information: (2012). Journal of Child Neurology, Online First March 23.
There is a need to involve palliative care services in the care of children with progressive neuromuscular diseases (PMD), however there have been no reviews of the utilization of palliative care services for this cohort. A retrospective chart review of all children who had PMD who died on a single-centre palliative program was conducted to investigate the services utilized by these patients.
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