Abstract

This article describes the rationale for planning and conducting a qualitative pilot study about families’ transition to a Canadian paediatric hospice. Discussion includes: background information and a literature review pertinent to the study; debate around the term ‘hospice’ versus ‘palliative care’; the different and unique needs of children requiring a palliative approach compared with adult hospice patients; and information about planning and beginning the study, including the rationale for a pilot, details about the study site, recruitment and procedures, and data collection and analysis. The results from the pilot study, as well as implications for practice and research are reported in part two.