Welcome to our research network
The ultimate goal of PedPalASCNET is to determine, through research, the interventions that are most effective in strengthening positive and mitigating negative outcomes of children with life-threatening conditions and the relative impact on their families. PedPalASCNET links researchers located across Canada, and engages in resource sharing, capacity building and knowledge translation.
Analysis & Commentary
Each month our team selects the most recent research published in the pediatric palliative community. From these citations one of our researchers selects 1-3 articles to analyze and comment on. We circulate these citations and commentaries through our mailing list.
PedPalASCNET team members have published extensively nationally and internationally about pediatric palliative care. Click above to find out more about publications featuring one or more of our team members. Some of the articles are available for free while others are subscription based.
A pediatric palliative care library featuring a searchable database of over 4,000 carefully selected articles, book publications, and editorials with external links for full text access. This resource is easily searchable and provides a good overview of current and past research in pediatric palliative care. Every month we update the library with 20-40 newly published articles retrieved from relevant medical databases.
Wondering where to publish pediatric palliative research? Want research tips?
Analysis & Commentary
Commentary by Brian S. Carter, MD, FAAP Feature Articles: Beernaert, K., Lovgren, M., Jeppesen, J., Werlauff, U., Rahbek, J., Sejersen, T., & Kreicbergs, U. (2019). Parents’ Experiences of Information and Decision Making in the Care of Their Child with Severe Spinal Muscular Atrophy: A Population Survey. J Child Neurol, 883073818822900. Nelson, K. E., Rosella, L. Read more about Trends in Pediatric Palliative Care Research 2019; Issue #3[…]
By Colleen Pawliuk, MLIS Every year we look back at the citation lists we’ve published and share our data in the hopes of informing the pediatric palliative research community about which journals are being published in most often, which authors are featured most often and the impact factors assigned to those publications. This year we Read more about Trends in Pediatric Palliative Care – Visuals and Analysis of Trends: January-December 2018[…]
Commentary by Dr. Dave Lysecki Feature Articles: Fayed, N., Guttmann, A., Chiu, A., Gardecki, M., Orkin, J., Hamid, J. S., Major, N., Lim, A., & Cohen, E. (2018). Family-provider consensus outcomes for children with medical complexity. Developmental Medicine & Child Neurology. Friedel, M., Aujoulat, I., Dubois, A. C., & Degryse, J. M. (2019). Instruments to Measure Read more about Trends in Pediatric Palliative Care Research 2019; Issue #2[…]
Commentary by Megan Doherty, MD, FRCPC, Fellowship in Palliative Medicine, Children’s Hospital of Eastern Ontario and Roger Neilson House, Palliative Care Team, Pediatric Program Director, Two Worlds Cancer Collaboration Foundation Feature Article: Weaver, M. S., & Wichman, C. (2018). Implementation of a Competency-Based, Interdisciplinary Pediatric Palliative Care Curriculum Using Content and Format Preferred by Pediatric Residents. Read more about Trends in Pediatric Palliative Care Research 2019; Issue #1[…]