Welcome to our research network

Our Goal

The ultimate goal of PedPalASCNET is to determine, through research, the interventions that are most effective in strengthening positive and mitigating negative outcomes of children with life-threatening conditions and the relative impact on their families. PedPalASCNET links researchers located across Canada, and engages in resource sharing, capacity building and knowledge translation.

Go to Analysis & Commentary

Analysis & Commentary

Each month our team selects the most recent research published in the pediatric palliative community. From these citations one of our researchers selects 1-3 articles to analyze and comment on. We circulate these citations and commentaries through our mailing list.

Go to Latest Publications

Latest Publications

PedPalASCNET team members have published extensively nationally and internationally about pediatric palliative care. Click above to find out more about publications featuring one or more of our team members. Some of the articles are available for free while others are subscription based.

Go to Library

Library

A pediatric palliative care library featuring a searchable database of over 4,000 carefully selected articles, book publications, and editorials with external links for full text access. This resource is easily searchable and provides a good overview of current and past research in pediatric palliative care. Every month we update the library with 20-40 newly published articles retrieved from relevant medical databases.

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SEARCH IN OUR LIBRARY

Interested in knowing more about our research? Subscribing to our mailing list to receive updates on the latest research?

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Our Research

Multiple projects covering a variety of topics in pediatric palliative care

PedPalASCNET research does not focus on any one condition or cause of illness but seeks to provide information relevant to the practice of pediatric palliative care

CURRENT AND PAST PROJECTS:

Scoping Review: Mapping the Literature on Treatment of Symptoms in Children with Q3 Conditions

Pain and Irritability: A Standard Approach to Idiopathic Pain/Irritability in Children with Rare Neurological Conditions

Best Practices: Provider/Parent Interactions in Pediatrics

Charting the Territory: Determining and Documenting Trajectories of Families where a Child has a Life-Threatening Condition

Salivary Biomarker Study: Development of a Non-invasive Biomarker for Measuring Stress in Children with Somatic Symptoms

Stress and Growth over Time: Caregiving and Bereaved Parents of Children With Life-Limiting Illnesses

Affiliated Research Institutions and Funders

Our Team

PedPalASCNET researchers and staff

Principal Investigator

Hal Siden, MD, MHSc, FRCPC

In addition to his clinical work in pediatrics, palliative medicine and complex pain, Dr. Siden’s recent research has focused on pain management in pediatrics and palliative and end-of-life care. He is specifically interested in new and emerging areas in biological markers of pain in children

Co-investigators

Thirteen co-investigators from across Canada

The network’s inter-disciplinary team of investigators represents a broad range of organizations, including hospitals, hospices, and universities. The team brings together clinical and research expertise in nursing, social work, medicine, and anthropology. Click the link below to see profiles.

Staff

Project managers and librarians

Our dedicated staff includes a research coordinator, program manager, and an embedded librarian

Support Team

Student employees, therapy dogs, and volunteers

Poppy is a therapy dog at Canuck Place Hospice and promotes a sense of well-being at our Vancouver office

Investigator & Staff Profiles

More Info on our Support Team and Students

Wondering where to publish pediatric palliative research? Want research tips?

Learn More

Analysis & Commentary

Pediatric Palliative researchers offer insightful commentary on the latest research

Trends in Pediatric Palliative Care – Visuals and Analysis of Trends: January-December 2019

By Prubjot Gill, Student Librarian Every year we look back at the citation lists we’ve published and share our data in the hopes of informing the pediatric palliative research community about which journals are being published in most often, which authors are featured most often, and the impact factors assigned to those publications. This year we Read more about Trends in Pediatric Palliative Care – Visuals and Analysis of Trends: January-December 2019[…]

Trends in Palliative Care Research 2019; Issue #12

Commentary by Dr. Justin N. Baker, MD, FAAHPM Feature Articles: Levy, K., Grant, P. C., Tenzek, K. E., Depner, R. M., Pailler, M. E., & Beaupin, L. K. (2019). The Experience of Pediatric Palliative Caregiving: A Qualitative Analysis From the Photographs of Meaning Program. The American Journal of Hospice & Palliative Care., 1049909119879413(02). Other articles referenced: Levy, K., Grant, P. C., Depner, R. M., Tenzek, K. E., Pailler, M. E., Beaupin, L. Read more about Trends in Palliative Care Research 2019; Issue #12[…]

Trends in Palliative Care Research 2019; Issue #10

Commentary by Dr. Hazel Maria Gutierrez Ramirez Feature Articles: Cote, A. J., Gaucher, N., & Payot, A. (2019). Who should discuss goals of care during acute deteriorations in patients with life threatening illnesses? A survey of clinicians from diverse pediatric specialties. Paediatrics and Child Health (Canada), 24 (Supplement 2), e25. Other articles referenced: Amy Sanderson, Read more about Trends in Palliative Care Research 2019; Issue #10[…]

Trends in Palliative Care Research 2019; Issue #9

Commentary by Dr. Marie-Claude Grégoire Feature Articles:Janvier, A., Farlow, B., Barrington, K. J., Bourque, C. J., Brazg, T., & Wilfond, B. (2019). Building trust and improving communication with parents of children with Trisomy 13 and 18: A mixed-methods study. Palliative Medicine. Other articles referenced: Janvier A, Farlow B and Barrington KJ. Parental hopes, interventions, and Read more about Trends in Palliative Care Research 2019; Issue #9[…]

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