Welcome to our research network

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Our Research

Multiple projects covering a variety of topics in pediatric palliative care

PedPalASCNET research does not focus on any one condition or cause of illness but seeks to provide information relevant to the practice of pediatric palliative care

CURRENT AND PAST PROJECTS:

Scoping Review: Mapping the Literature on Treatment of Symptoms in Children with Q3 Conditions

Pain and Irritability: A Standard Approach to Idiopathic Pain/Irritability in Children with Rare Neurological Conditions

Best Practices: Provider/Parent Interactions in Pediatrics

Charting the Territory: Determining and Documenting Trajectories of Families where a Child has a Life-Threatening Condition

Salivary Biomarker Study: Development of a Non-invasive Biomarker for Measuring Stress in Children with Somatic Symptoms

Stress and Growth over Time: Caregiving and Bereaved Parents of Children With Life-Limiting Illnesses

Affiliated Research Institutions and Funders

Our Team

PedPalASCNET researchers and staff

Investigator & Staff Profiles

More Info on our Support Team and Students

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Analysis & Commentary

Pediatric Palliative researchers offer insightful commentary on the latest research

Trends in Palliative Care Research 2021; Issue #10

Commentary by: Dr. Arun Ghoshal, Clinical Fellow in Palliative Medicine, Princess Margaret Cancer Center, Toronto, CA Feature Article: Battista, V., Baker, D. J., Trimarchi, T., Sabri, B., D’Aoust, R. F., & Wright, R. (2021). Advance Directives for Adolescents and Young Adults Living With Neuromuscular Disease: An Integrative Review of the Literature. Journal of Hospice and Read more about Trends in Palliative Care Research 2021; Issue #10[…]

Trends in Palliative Care Research 2021; Issue #09

Commentary by: Katherine Ketchum, University College Dublin Medical Student and former research assistant for the Siden Lab, BC Children’s Hospital Research Institute Feature Article: Rapoport, A., & Gupta, S. (2021). Children and adolescents with hematologic cancers deserve better end-of-life care. Cancer. View the Issue #9 Citation List in the Library View a PDF of the Read more about Trends in Palliative Care Research 2021; Issue #09[…]

Trends in Palliative Care Research 2021; Issue #08

Commentary by: Julia St Louis, RN at Alberta Children’s Hospital NICU, PICU, and Palliative Care Program MN Candidate at the University of Calgary Feature Article: Barks, M. C., Schindler, E. A., Ubel, P. A., Jiao, M. G., Pollak, K. I., Huffstetler, H. E., & Lemmon, M. E. (2021). Assessment of parent understanding in conferences for Read more about Trends in Palliative Care Research 2021; Issue #08[…]

Trends in Palliative Care Research 2021; Issue #07

Commentary by: Dr. Tiina Jaaniste, head of the Pain and Palliative Care Research Team at Sydney Children’s Hospital, Randwick, Australia and Senior Conjoint Lecturer in the School of Women’s and Children’s Health, University of New South Wales, Australia. Wan Julianna Alysha, Medical Student, Department of Palliative Care, Sydney Children’s Hospital, Randwick NSW 2031 Australia; and Read more about Trends in Palliative Care Research 2021; Issue #07[…]

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