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Our Research

Multiple projects covering a variety of topics in pediatric palliative care

PedPalASCNET research does not focus on any one condition or cause of illness but seeks to provide information relevant to the practice of pediatric palliative care

CURRENT AND PAST PROJECTS:

Scoping Review: Mapping the Literature on Treatment of Symptoms in Children with Q3 Conditions

Pain and Irritability: A Standard Approach to Idiopathic Pain/Irritability in Children with Rare Neurological Conditions

Best Practices: Provider/Parent Interactions in Pediatrics

Charting the Territory: Determining and Documenting Trajectories of Families where a Child has a Life-Threatening Condition

Salivary Biomarker Study: Development of a Non-invasive Biomarker for Measuring Stress in Children with Somatic Symptoms

Stress and Growth over Time: Caregiving and Bereaved Parents of Children With Life-Limiting Illnesses

Affiliated Research Institutions and Funders

Our Team

PedPalASCNET researchers and staff

Investigator & Staff Profiles

More Info on our Support Team and Students

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Analysis & Commentary

Pediatric Palliative researchers offer insightful commentary on the latest research

Trends in Palliative Care Research 2021; Issue #05

Commentary by Laurie Lee, Pediatric ICU Nurse Practitioner, clinician scientist and director of the Alberta Children’s Hospital PICU Research Program Feature Article: Parsons, E., & Darlington, A. S. (2021). Parents’ perspectives on conflict in paediatric healthcare: A scoping review. Archives of Disease in Childhood, (no pagination). View the Issue #5 Citation List in the Library Read more about Trends in Palliative Care Research 2021; Issue #05[…]

Trends in Palliative Care Research 2021; Issue #04

Commentary by Dr. Fariel Rahman, Neurodisability Consultant at Children’s Hospices Across Scotland (CHAS). Feature Article: Ekberg, S., Herbert, A., Johns, K., Tarrant, G., Sansone, H., Yates, P., Danby, S., & Bradford, N. K. (2020). Finding a way with words: Delphi study to develop a discussion prompt list for paediatric palliative care. Palliat Med, 34(3), 291–299. View Read more about Trends in Palliative Care Research 2021; Issue #04[…]

Trends in Palliative Care Research 2021; Issue #03

Commentary by Dr Christina Vadeboncoeur, Associate Professor, uOttawa, Medical Director, Palliative Care Program, CHEO and Roger Neilson House, Ottawa Canada Feature Articles: Guttmann, K., Flibotte, J., Seitz, H., Huber, M., & DeMauro, S. B. (2021). Goals of Care Discussions and Moral Distress among Neonatal Intensive Care Unit Staff. J Pain Symptom Manage. Dryden-Palmer, K., Moore, Read more about Trends in Palliative Care Research 2021; Issue #03[…]

Trends in Palliative Care Research 2021; Issue #02

Commentary by Dr Arshia Madni, Attending Physician in Pediatric Palliative Care and Hospitalist Medicine at St Jude Children’s Research Hospital Feature Article: Miller, K. A., Baird, J., Lira, J., Herrera Eguizabal, J., Fei, S., Kysh, L., & Lotstein, D. (2020). The use of telemedicine for home-based palliative care for children with serious illness: A scoping Read more about Trends in Palliative Care Research 2021; Issue #02[…]

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