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Our Research

Multiple projects covering a variety of topics in pediatric palliative care

PedPalASCNET research does not focus on any one condition or cause of illness but seeks to provide information relevant to the practice of pediatric palliative care

CURRENT AND PAST PROJECTS:

Scoping Review: Mapping the Literature on Treatment of Symptoms in Children with Q3 Conditions

Pain and Irritability: A Standard Approach to Idiopathic Pain/Irritability in Children with Rare Neurological Conditions

Best Practices: Provider/Parent Interactions in Pediatrics

Charting the Territory: Determining and Documenting Trajectories of Families where a Child has a Life-Threatening Condition

Salivary Biomarker Study: Development of a Non-invasive Biomarker for Measuring Stress in Children with Somatic Symptoms

Stress and Growth over Time: Caregiving and Bereaved Parents of Children With Life-Limiting Illnesses

Affiliated Research Institutions and Funders

Our Team

PedPalASCNET researchers and staff

Investigator & Staff Profiles

More Info on our Support Team and Students

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Analysis & Commentary

Pediatric Palliative researchers offer insightful commentary on the latest research

Trends in Palliative Care Research 2022; Issue #03

Commentary by: Dr. Phanice Okara, Neonatal-Perinatal Medicine Clinical Fellow, UBC, Canada Feature Article: Turner, S., Littlemore, J., Taylor, J., Parr, E., & Topping, A. E. (2022). Metaphors that shape parents’ perceptions of effective communication with healthcare practitioners following child death: A qualitative UK study. BMJ Open, 12(1), e054991. View the Issue #03 Citation List in Read more about Trends in Palliative Care Research 2022; Issue #03[…]

Trends in Palliative Care Research 2022; Issue #02

Commentary by: Dr. Hal Siden, Medical Director, Canuck Place Children’s Hospice; Division Head, Palliative Medicine, BC Children’s Hospital; Editor, Trends in Pediatric Palliative Care Feature Article: Morrison, R. Sean, Diane E. Meier, and Robert M. Arnold. “What’s Wrong With Advance Care Planning?” JAMA 326, no. 16 (October 26, 2021): 1575. https://doi.org/10.1001/jama.2021.16430 View the Issue #02 Read more about Trends in Palliative Care Research 2022; Issue #02[…]

Trends in Palliative Care Research 2022; Special Edition #01

Special Edition #01 is focused on research that examines the experiences of parents and their unique and rich personal perspectives caring for their child with medical complexity. This issue includes commentaries written by two parents, who recently participated in a virtual journal club hosted by Siden Lab at BC Children’s Hospital Research Institute. They have Read more about Trends in Palliative Care Research 2022; Special Edition #01[…]

Trends in Palliative Care Research 2022; Issue #01

Commentary by: Emily Johnston, BScH, University of British Columbia Medical Student and Research Assistant for the Siden Lab at BC Children’s Hospital Research Institute Feature Article: Williams, E., Jarrell, J. A., & Rubenstein, J. (2021). A Week in the Life: Pediatric Palliative Care through the Eyes of a Medical Student. Children (Basel), 8(11). View the Read more about Trends in Palliative Care Research 2022; Issue #01[…]

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