ABOUT THE AUTHOR Blyth Lord – Courageous Parents Network, USA Blyth Lord is the founder and executive director of Courageous Parents Network, a non-profit whose mission it is to orient, equip and empower parents and others caring for children living…

Callie Daniels-Howell – International Children’s Palliative Care Network, USA Dr. Callie Daniels-Howell is Research Manager at the International Children’s Palliative Care Network, where she leads research and field-building initiatives to advance palliative care for children with life-limiting conditions worldwide. She…

Gail Andrews – Canuck Place Children’s Hospice and University of British Columbia Vancouver, BC, Canada Gail is a registered nurse working in research at the University of British Columbia, and a bedside nurse at Canuck Place Children’s Hospice. Through her…

Darlene Durand, Parent, Canada – As the full time caregiver to a child with significant medical needs, I bring a deeply personal understanding of the emotional and practical realities of long term caregiving. My work as a family research partner…

James A. Feinstein – University of Colorado School of Medicine and Children’s Hospital Colorado, USA Dr. James Feinstein is a Professor of Pediatrics at the University of Colorado School of Medicine and Medical Director of the Colorado Child Health Research…

Mercedes Bernadá, MD – Associate Professor of Pediatrics, School of Medicine of the University of the Republic in Montevideo, Asociación Española, Uruguay Dr. Bernadá’s is a leading specialist in pediatric palliative care (PPC) and served as Coordinator of thePPC Unit…