Charting the Territory: Determining and Documenting Trajectories of Families where a Child has a Life-Threatening Condition
Little is understood about the trajectory of children diagnosed with progressive life-threatening conditions and their families. Existing research suggests that both positive and negative outcomes may occur within families’ experiences. This ongoing study aims to understand the trajectory of childhood life-threatening conditions, using a holistic approach that examines the bio-psychosocial-spiritual dimensions within a longitudinal, prospective approach as families move from diagnosis through bereavement.
This knowledge will enable practitioners and policy makers to better understand the realities of families where a child has a progressive life-threatening condition and design appropriate intervention and support strategies.