A Standard Approach to Idiopathic Pain/Irritability in Children with Rare Neurological Conditions
Children with rare diseases who are neurologically impaired and non-verbal often experience pain due to unknown causes. Often there are no obviously correctable sources for pain and irritability. Medication choices and the sequence in which they are introduced vary between physicians. This may result in inconsistent and/or ineffective care. The study aims to find a more consistent way to treat unexplained pain and irritability in infants, children and youth with rare diseases. The study will also lead to the development of a step by step guide to pain management.
This pilot project will culminate in the development of an application for a full operating grant. Ultimately, we hope to derive a clinical guideline for clinicians streamlining pain management for this population.