Trends in Pediatric Palliative Care 2016; Issue #8

Dr. Hal Siden Feature Article: Ullrich, CK, Lehmann, L, London W, et al. (2016) End-of-Life Care Patterns Associated with Pediatric Palliative Care among Children Who Underwent Hematopoietic Stem Cell Transplant. Biology of Blood and Marrow Transplantation. This interesting article examines end-of-life care provided to a very specific but important population, children who have undergone stem-cell transplant (SCT). The Read more about Trends in Pediatric Palliative Care 2016; Issue #8[…]

Charting the Territory: Children and families living with progressive life-threatening conditions – Author Commentary

Dr. Hal Siden This month’s blog post features commentary by Dr. Hal Siden on his article, “Charting the Territory: Children and families living with progressive life-threatening conditions”. Feature Article: Siden, H. & Steele, R. (2015) Charting the Territory: Children and families living with progressive life-threatening conditions. Paediatrics & Child Health. Why did we write this article? Rose Steele Read more about Charting the Territory: Children and families living with progressive life-threatening conditions – Author Commentary[…]

What can reported symptoms tell us about caring for children with progressive, non-curable diseases?

Olivia Jang Featured Article: Siden, H. & Steele, R. (2015) Charting the Territory: Children and families living with progressive life-threatening conditions. Paediatrics & Child Health. Many children who are in pediatric palliative care have life-threatening diseases which are progressive neurological conditions (PNC). These children are typically affected by impaired central nervous system function and experience multiple physical symptoms Read more about What can reported symptoms tell us about caring for children with progressive, non-curable diseases?[…]

Does pediatric palliative care research really increase burden for parents?

Joanie Maynard Featured Article: Steele, R., Cadell, S., Siden, H., Andrews, G., Smit Quosai, T. & Feichtinger, L. Impact of research participation on parents of seriously ill children. Journal of Palliative Medicine. In the last few years, research in pediatric palliative care (PPC) has become more prominent in the literature, but institutional review boards are still offering little Read more about Does pediatric palliative care research really increase burden for parents?[…]