Are you a parent or caregiver of a child with a complex medical condition? We have collected some resources (including ways to get involved in research, how to connect with other parents, and results of our past research) on this page.
Ways to get involved in research
Did you know that you could be involved in every stage of the research publication cycle? As a parent or caregiver of a child with a complex medical condition, you could:
- partner with a research team to identify priorities
To learn more about patient engagement, visit the McMaster University Public and Patient Engagement Collaborative page.
Our projects:
- Pain & Irritability in Children With Health Complexity – visit the Pain Detectives website for more information, and sign up here
Other projects:
Connect with other parents
- Join the twice-yearly Journal Club for parents (mothers, fathers, and caregivers of all kinds) of children with medical complexity – contact Laesa Kim for details and registration
Research results
Other resources
- Join the Trends in Pediatric Palliative Care Zotero Library to find citations related to pediatric palliative care
- Join the Parent Journal Club Zotero Library to find citations related to lived and living experience with children with medical complexity
- Listen to the Matters of Engagement Podcast to learn about patient partnership, patient engagement, and more
Know of any resources or current opportunities that could be helpful to other parents? Let us know via email ([email protected]) or Bluesky.