Special Edition #01 is focused on research that examines the experiences of parents and their unique and rich personal perspectives caring for their child with medical complexity. This issue includes commentaries written by two parents, who recently participated in a…
Commentary by: Emily Johnston, BScH, University of British Columbia Medical Student and Research Assistant for the Siden Lab at BC Children’s Hospital Research Institute Feature Article: Williams, E., Jarrell, J. A., & Rubenstein, J. (2021). A Week in the Life:…
Commentary by: D.A. Colenbrander MD, Pediatrician, Jeroen Pit Huis, Amsterdam H. Knoester, MD, PhD, Pediatric Intensivist, Emma Children’s Hospital, Amsterdam Feature Article: Vallianatos, S., Huizinga, C. S. M., Schuiling-Otten, M. A., Schouten-van Meeteren, A. Y. N., Kremer, L. C. M.,…
Commentary by: Rebecca E. MacDonell-Yilmaz, MD, MPH, Pediatric Hematologist/Oncologist and Hospice & Palliative Care Physician, The Warren Alpert Medical School of Brown University and HopeHealth, Providence, RI, USA Feature Article: Johnson, K. A., Morvant, A., James, K., & Lindley, L.…
Commentary by: Dr. Arun Ghoshal, Clinical Fellow in Palliative Medicine, Princess Margaret Cancer Center, Toronto, CA Feature Article: Battista, V., Baker, D. J., Trimarchi, T., Sabri, B., D’Aoust, R. F., & Wright, R. (2021). Advance Directives for Adolescents and Young…
Commentary by: Katherine Ketchum, University College Dublin Medical Student and former research assistant for the Siden Lab, BC Children’s Hospital Research Institute Feature Article: Rapoport, A., & Gupta, S. (2021). Children and adolescents with hematologic cancers deserve better end-of-life care.…