Tag: ethics

Trends in Pediatric Palliative Care 2017; Issue #6

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By Dr. Adam Rapoport. Feature Article: Birchley, G., Gooberman-Hill, R., Deans, Z., Fraser, J., & Huxtable, R. (2017). “Best interests” in paediatric intensive care: an empirical ethics study. Archives of Disease in Childhood. https://doi.org/10.1136/archdischild-2016-312076 In my role as a pediatric palliative care physician, I routinely find myself meeting with families and PICU colleagues, trying to Read more about Trends in Pediatric Palliative Care 2017; Issue #6[…]

Trends in Pediatric Palliative Care 2016; Issue #12

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Andrea Johnson, PhD (c), RSW Feature Article: Rosenberg, A.R., Wolfe, J., Wiener, L., Lyon, M. & Feudtner, C. (2016). Ethics, emotions, and the skills of talking about progressing disease with terminally ill adolescents. JAMA Pediatrics Although the practice of medical truth-telling has evolved to regularly include full disclosure of medical information to patients, with adolescents, Read more about Trends in Pediatric Palliative Care 2016; Issue #12[…]

Does pediatric palliative care research really increase burden for parents?

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Joanie Maynard Featured Article: Steele, R., Cadell, S., Siden, H., Andrews, G., Smit Quosai, T. & Feichtinger, L. Impact of research participation on parents of seriously ill children. Journal of Palliative Medicine. In the last few years, research in pediatric palliative care (PPC) has become more prominent in the literature, but institutional review boards are still offering little Read more about Does pediatric palliative care research really increase burden for parents?[…]