Trends in Pediatric Palliative Care 2017; Issue #7

By Dr. Kimberley Widger. Feature Articles: Rahimzadeh, V., Bartlett, G., Longo, C., Crimi, L., Macdonald, M. E., Jabado, N., & Ells, C. (2015). “Promoting an Ethic of Engagement in Pediatric Palliative Care Research Ethics, Organization and Policy.” BMC Palliative Care 14, no. 1. doi:http://dx.doi.org/10.1186/s12904-015-0048-5. Hudson, B. F., Oostendorp, L. J. M., Candy, B., Vickerstaff, V., Jones, L., Lakhanpaul, M., Bluebond-Langner, M., & Stone, P. (2017). “The under Reporting of Read more about Trends in Pediatric Palliative Care 2017; Issue #7[…]

What can reported symptoms tell us about caring for children with progressive, non-curable diseases?

Olivia Jang Featured Article: Siden, H. & Steele, R. (2015) Charting the Territory: Children and families living with progressive life-threatening conditions. Paediatrics & Child Health. Many children who are in pediatric palliative care have life-threatening diseases which are progressive neurological conditions (PNC). These children are typically affected by impaired central nervous system function and experience multiple physical symptoms Read more about What can reported symptoms tell us about caring for children with progressive, non-curable diseases?[…]

Does pediatric palliative care research really increase burden for parents?

Joanie Maynard Featured Article: Steele, R., Cadell, S., Siden, H., Andrews, G., Smit Quosai, T. & Feichtinger, L. Impact of research participation on parents of seriously ill children. Journal of Palliative Medicine. In the last few years, research in pediatric palliative care (PPC) has become more prominent in the literature, but institutional review boards are still offering little Read more about Does pediatric palliative care research really increase burden for parents?[…]