Citation List: 2021; Issue 07 (July 2021 List)
Telemedicine in children with medical complexity on home ventilation during the COVID-19 pandemic
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Children with medical complexity (CMC) are patients with one or more complex chronic conditions dependent on medical technologies. In our unit (Pediatric Pulmonology and Respiratory Intermediate Care Unit, Department of Pediatrics, “Bambino Gesù” Children’s Hospital and Research Institute), we regularly follow-up CMC patients, particularly children on long-term, invasive (IMV) or noninvasive (NIV), ventilation. Children suffering from…
Treatment limitation and advance planning: Hospital-wide audit of paediatric death
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AIM: To examine paediatric deaths following withdrawal or withholding of medical treatment (WWMT) from a hospital-wide perspective and identify changes over a 10 year period. METHODS: A retrospective review of medical records was conducted for all paediatric inpatient deaths at the Royal Children’s Hospital, Melbourne from April 2015 to April 2016, and results were compared…
Using Photo-Elicitation Interviews With Families of Children and Adolescents With Chronic Illness
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BACKGROUND: Despite the increasing number of studies using photo-elicitation for data collection in qualitative research, there is a need to further explore its use among families of children and adolescents living with chronic illness. OBJECTIVE(S): The aim of this study was to discuss methodological and pragmatic considerations about the use of photo-elicitation interviews (PEIs) for…
Venous Thromboembolism among Critically Ill Children: A Narrative Review
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Venous thromboembolism (VTE) is a leading cause of morbidity and mortality among hospitalized patients, including children. In recent years, it has become clear that hospitalization and critical illness bestow an increased VTE risk in pediatrics and relate to mortality and life-limiting comorbidities. For critically ill children, reported rates of VTE vary by study sampling techniques,…
Survey of paediatricians caring for children with life-limiting conditions found that they were involved in advance care planning
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AIM: Advance care planning (ACP) is a strategy to align future care and treatment with preferences of patients and families. This study assesses the experiences of ACP among paediatricians caring for children with life-limiting conditions. METHODS: Paediatricians from five Dutch university hospitals and the national oncology centre completed a survey during May to September 2017, which…
Pediatric care coordination and risk tiering: Moving beyond claims data
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PURPOSE: The goal of this study was to evaluate the performance of a pediatric stratification tool that incorporates health and non-medical determinants to identify children and youth with special health care needs (CYSHCN) patients according to increasing levels of complexity and compare this method to existing tools for pediatric populations. METHODS: This retrospective cohort study…