MeSH: Adaptation, Psychological
Parents’ views on what facilitated or complicated their grief after losing a child to cancer
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OBJECTIVES: The loss of a child is a devastating event, and bereaved parents often suffer intense and long-lasting grief reactions and are at risk for psychological symptoms. More knowledge about how parents cope with grief may improve the support to bereaved parents. This study, therefore, aimed to explore parents’ views on what facilitated or complicated…
Community Resource Connection for Pediatric Caregivers with Unmet Social Needs: A Qualitative Study
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OBJECTIVE: Pediatric health systems are increasingly screening caregivers for unmet social needs. However, it remains unclear how best to connect families with unmet needs to available and appropriate community resources. We aimed to explore caregivers’ perceived barriers to and facilitators of community resource connection. METHODS: We conducted semi-structured interviews with caregivers of pediatric patients admitted…
Parent’s Lived Experience of Memory Making With Their Child at or Near End of Life
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BACKGROUND: Memory making is the process of creating mementos of a child with a life limiting condition, who may be at or near end of life, providing a tangible and visual connection to the child who has died. AIM: This study explored the lived experience a memory making process had on parents of children who…
Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians
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BACKGROUND: Family process disruption is one of the main consequences of the hospitalization of a critically ill child in a Paediatric Intensive Care Unit (PICU). Children’s visits to PICU may help improve family coping. However, this is not standard practice and nurses’ experiences in facilitating children’s visits to units where it is encouraged is unknown.,…
Parental Posttraumatic Growth After Pediatric Hematopoietic Stem Cell Transplant
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Little is known about the development of posttraumatic growth among parents of children with serious advanced disease. The purpose of this study is to describe parental posttraumatic growth 100 days after pediatric stem cell transplant. This is a cross-sectional, descriptive study of 24 parents, approximately 100 days after their children received stem cell transplant. Participants…
Self-reported experiences of siblings of children with life-threatening conditions: A scoping review
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Sibling relationships are one of the most long-lasting and influential relationships in a human’s life. Living with a child who has a life-threatening condition changes healthy siblings’ experience. This scoping review summarized and mapped research examining healthy siblings’ experience of living with a child with a life-threatening condition to identify knowledge gaps and provide direction…