MeSH: Decision Making, Shared
End-of-Life Childhood Cancer Research: A Systematic Review
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CONTEXT: Children with incurable cancer may participate in research studies at the end of life (EOL). These studies create knowledge that can improve the care of future patients. OBJECTIVE: To describe stakeholder perspectives regarding research studies involving children with cancer at the EOL by conduct of a systematic review. DATA SOURCES: We used the following…
Comfort-holding in critically ill children: a scoping review
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OBJECTIVES: Systematically review parental perceptions of shared decision-making (SDM) in neonatology, identifying barriers and facilitators to implementation., METHODS: Electronic database (Medline, PsycINFO, CINAHL and Scopus) and follow-up searches were conducted to identify qualitative studies. Data were extracted, thematically analysed and synthesised., RESULTS: Searches yielded 2445 papers, of which 25 were included. Thematic analysis identified six…
Parent and Adolescent Perspectives on the Impact of COVID on the Care of Seriously Ill Children
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Context : Few studies have explored the impact of the Coronavirus Pandemic (COVID-19) on the care of seriously ill children which may be especially affected due to the child’s vulnerability, complexity of care, and high reliance on hospital-based care. Objective : To explore parental and adolescent perspectives on the impact of COVID-19 on care of…
Shared decision making for children with chronic respiratory failure-It takes a village and a process
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BACKGROUND AND OBJECTIVES: Shared decision making (SDM) before nonurgent tracheostomy in a child with chronic respiratory failure (CRF) is often recommended, but has proven challenging to implement in practice. We hypothesize that utilization of the microsystem model for analysis of the complex ecosystem in which SDM occurs will yield insights that enable formation of a…