MeSH: Emotions
Parent and Adolescent Perspectives on the Impact of COVID on the Care of Seriously Ill Children
—
by
Context : Few studies have explored the impact of the Coronavirus Pandemic (COVID-19) on the care of seriously ill children which may be especially affected due to the child’s vulnerability, complexity of care, and high reliance on hospital-based care. Objective : To explore parental and adolescent perspectives on the impact of COVID-19 on care of…
Parents’ experiences during and after their child’s stay in the paediatric intensive care unit – A qualitative interview study
—
by
Background Having a child admitted to the paediatric intensive care unit (PICU) is often an emotional and stressful experience for parents. Aim The aim of the study was to explore parents’ experiences during and after their child’s hospitalization in the PICU and to investigate whether parents have a need for post-PICU follow-up. Material and methods…
Legacy Building in Pediatric End-of-Life Care through Innovative Use of a Digital Stethoscope
—
by
Background: Legacy making has been the focus of recent literature; however, few studies examine how legacy making affects bereaved parents. Objective: To better understand legacy making’s effect on bereaved parents, this study examined (1) the presentation of legacy making to parents, (2) parent satisfaction, and (3) parent utilization of the project. Design: Eko CORE (Eko…
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
—
by
BACKGROUND: Communication in the pediatric intensive care unit (PICU) between families and the health care team affects the family experience, caregiver psychological morbidity, and patient outcomes. OBJECTIVE: To test the feasibility of studying and implementing a PICU communication intervention called PICU Supports, and to assess families’ and health care teams’ perceptions of the intervention. METHODS:…
Experiences of fathers of children with a life-limiting condition: a systematic review and qualitative synthesis
—
by
BACKGROUND: Children with a life-limiting condition often require extensive and complex care, much of which is provided by their parents at home. There is a growing body of research that aims to understand the experiences of these parents, but the majority of this research is from mothers’ perspectives, meaning that fathers’ experiences are not well…