MeSH: Family

Vulnerability and agency across treatment-seeking journeys for acutely ill children: how family members navigate complex healthcare before, during and after hospitalisation in a rural Kenyan setting
Jan 13, 2025
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by
Siden Research Team
BACKGROUND: Child mortality rates during hospitalisation for acute illness and after discharge are unacceptably high in many under-resourced settings. Childhood vulnerability to recurrent illness, and death, is linked to their families’ situations and ability to make choices and act (their agency). We examined vulnerability and agency across treatment-seeking journeys for acutely ill children and considered…
Creating a safe space’: how perinatal palliative care coordinators navigate care and support for families
Jan 13, 2025
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by
Siden Research Team
BACKGROUND: Families who learn that their unborn baby has a life-limiting fetal condition are often overwhelmed by this news, alongside navigating an unfamiliar healthcare system. A skilled perinatal palliative care coordinator (PPCC) can help these families, yet little is known about their function and roles. AIMS: This study sought to describe the PPCC’s approach to…
Individualised decision making: interpretation of risk for extremely preterm infants-a survey of UK neonatal professionals
Jan 10, 2025
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by
Siden Research Team
BACKGROUND: The British Association of Perinatal Medicine (BAPM) published a revised framework for perinatal management of extremely preterm infants (EPIs) in 2019. We aimed to assess UK neonatal professionals’ interpretation of elements of this framework, as well as the consistency of their estimates of outcome for EPIs. METHOD(S): An online survey gave participants five cases…
Future roles of artificial intelligence in early pain management of newborns
Jan 8, 2025
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by
Siden Research Team
The objectives of this review were to identify strategies initiated by parents of children with life-limiting conditions to support their own well-being at home and to describe the impact of these strategies on parental well-being. A systematic scoping review was performed using PRISMA-ScR guidelines, identifying 15 relevant studies that fit the inclusion and exclusion criteria.…
Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data
Jan 8, 2025
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by
Siden Research Team
This study explores the nature of a therapeutic recreation-based bereavement camp for families whose child has died from serious illness. Open-ended surveys and interviews were conducted with parents attending a three-camp cycle over a 12-month period or a reunion camp. Thirteen parents completed open-ended surveys before and after each camp and six of these also…
Challenges of paediatric palliative care in the intensive care unit during the COVID-19 pandemic
Jan 8, 2025
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by
Siden Research Team
CONTEXT: Parents of patients with a serious illness experience psychological distress, which impacts parents’ wellbeing and, potentially, their ability to care for their children. Parent psychological distress may be influenced by children’s symptom burden and by families’ financial difficulty., OBJECTIVES: This study examined the associations among parent psychological distress, parent-reported patient symptoms, and financial difficulty,…

MeSH: Family

Vulnerability and agency across treatment-seeking journeys for acutely ill children: how family members navigate complex healthcare before, during and after hospitalisation in a rural Kenyan setting

Creating a safe space’: how perinatal palliative care coordinators navigate care and support for families

Individualised decision making: interpretation of risk for extremely preterm infants-a survey of UK neonatal professionals

Future roles of artificial intelligence in early pain management of newborns

Polysymptomatology in Pediatric Patients Receiving Palliative Care Based on Parent-Reported Data

Challenges of paediatric palliative care in the intensive care unit during the COVID-19 pandemic