MeSH: Health Personnel
Palliative Care in Pediatric Pulmonology
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Children with End Stage Lung Disease (ESLD) are part of the growing population of individuals with life-limiting conditions of childhood. These patients present with a diverse set of pulmonary, cardiovascular, neuromuscular, and developmental conditions. This paper first examines five cases of children with cystic fibrosis, bronchopulmonary dysplasia, neuromuscular disease, pulmonary hypertension, and lung transplantation from…
Potential Heart, Liver, and Kidney Donation after Circulatory Determination of Death in a Neonatal Intensive Care Unit
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OBJECTIVE: To implement an “Empathy Workshop” focused on improving Neonatal Intensive Care Unit (NICU) health care provider communication skills., METHODS: Staff-led, small group “Empathy Workshops” were conducted over a 2 year period. NICU parents answered a section of the “Picker Institute Parent Experiences of Neonatal Care Survey” in the pre- and post-intervention periods. NICU health…
Impact of educational programs on nurses’ knowledge and attitude toward pediatric palliative care
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CONTEXTS: Inadequate pain management in community pediatric palliative care is common. Evidence to inform improved pain management in this population is limited., OBJECTIVES: To explore the barriers and facilitators to pediatric community-based pain management for infants, children and young people at end-of-life as perceived by healthcare professionals., METHODS: A qualitative interview study was conducted. Semi-structured…
Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach
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BACKGROUND: In pediatric palliative care (PPC), there is a need to involve the child’s voice in situations regarding their symptoms and care needs. Patient-reported outcome measures (PROMs) can be tools to systematically gather data reported from the child or a proxy if the child is not capable to self-report in order to provide the services…
Improving Neonatal Intensive Care Unit Providers’ Perceptions of Palliative Care through a Weekly Case-Based Discussion
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Objective: The primary objective was to evaluate the efficacy of a weekly palliative care-guided, case-based discussion of high-risk infants on Neonatal Intensive Care Unit (NICU) physician (MD) and Advanced Practice Provider (APP) perceptions of pediatric palliative care (PPC). Study Design: The study setting was a level IV academic NICU in a United States midwestern children’s…
Pediatric Death by Neurologic Criteria: The Ever-Changing Landscape and the Expanding Role of Palliative Care Professionals
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Pediatric palliative care providers are especially suited to support families and medical teams facing a potential diagnosis of brain death, or death by neurologic criteria (DNC), when a child suffers a devastating brain injury. To support pediatric palliative care providers’ effectiveness in this role, this article elucidates the clinical determination of DNC and the evolution…