Siden Research Group

MeSH: Heart Defects, Congenital

Compassionate Deactivation of Pediatric Ventricular Assist Devices: A Review of 14 Cases
Jan 2, 2025
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by
Siden Research Team
CONTEXT: Compassionate deactivation (CD) of ventricular assist device (VAD) support is a recognized option for children when the burden of therapy outweighs the benefits. OBJECTIVES: To describe the prevalence, indications, and outcomes of CD of children supported by VADs at the end of life. METHODS: Review of cases of CD at our institution between 2011-2020.…
Belonging to a community of care: Mothers’ experiences of online peer support groups for parents having lost a child with congenital heart defects
Dec 2, 2024
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by
Siden Research Team
The aim was to study mothers’ experiences of online peer support groups after the death of a child. Participants (N = 8) were recruited through a newsletter for the Swedish association for families/children with heart defects, and two closed support groups on Facebook (900 and 100 members) and interviewed by telephone. Transcripts were analyzed with qualitative content…