MeSH: Hospitalization/sn [Statistics & Numerical Data]
Coronavirus Disease-19 deaths among children and adolescents in an area of Northeast, Brazil: why so many?
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OBJECTIVE: To describe COVID-19 deaths among children and adolescents in Sergipe, Brazil. METHODS: Ecological study of all COVID-19 reported cases and deaths occurring in children and adolescents <19 years of age in Sergipe reported by the health surveillance and mortality information systems of Sergipe's Health Secretary and hospital records. RESULTS: 37 deaths of children <19…
Parental experiences of the liminal period of a child’s fatal illness
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The article offers a description of parents’ experiences of their child’s ultimately fatal illness as it unfolds over the successive stages of medical treatment, in the context of the liminality theory. The parents (N = 23) were interviewed 1-4 years after their child’s death. The research method involved conducting narrative interviews with parents in order to obtain a…
Barriers and facilitators to shared decision-making in neonatal medicine: A systematic review and thematic synthesis of parental perceptions
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OBJECTIVE: To assess trends in place of death for children with a life-limiting condition and the factors associated with death at home or hospice rather than hospital., DESIGN: Observational cohort study using linked routinely collected data., SETTING: England., PATIENTS: Children aged 0-25 years who died between 2003 and 2017., MAIN OUTCOME MEASURES: Place of death:…
Mobile Health-Collected Biophysical Markers in Children with Serious Illness-Related Pain
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Context: There is an ongoing established need to develop engaging pain assessment strategies to provide more effective individualized care to pediatric patients with serious illnesses. This study explores the acceptability of wireless devices as one option. Objective: To evaluate the ability of wrist-wearable technology to collect physiological data from children with serious illnesses. Methods: Single-site…
A Tertiary Care-based Complex Care Program: Improving Care for Children With Medical Complexity
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OBJECTIVE: Children with medical complexity (CMC) have significant health care costs, but they also experience substantial unmet health care needs, hospitalizations, and medical errors. Their parents often report psychosocial stressors and poor care satisfaction. Complex care programs can improve the care for CMC. At our tertiary care institution, we developed a consultative complex care program…