MeSH: Neuromuscular Diseases
Perceptions of nurses caring for children with life-limiting conditions in an acute setting in the Republic of Ireland
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The use of advance directives is an important component in helping individuals living with chronic and/or life-threatening illnesses establish goals of care and make decisions regarding care at the end of life. Advance care planning may help achieve enhanced health outcomes, yet it is not routinely offered to adolescents/young adults living with neuromuscular disease. An…