MeSH: Patient-Centered Care
Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer
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PURPOSE: There are no existing quality measures (QMs) to optimize end-of-life care for children with cancer. Previously, we developed a set of 26 candidate QMs. Our primary objective in this study was to achieve stakeholder consensus on priority measures. METHODS: We conducted an iterative, cross-sectional electronic survey, using a modified Delphi method to build consensus…
Most Children With Medical Complexity Do Not Receive Care in Well-Functioning Health Care Systems
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OBJECTIVES: To describe the access of children with medical complexity (CMC) to well-functioning health care systems. To examine the relationships between medical complexity status and this outcome and its component indicators. PATIENTS AND METHODS: Secondary analysis of children in the National Survey of Children’s Health combined 2016-2017 data set who received care in well-functioning health…