MeSH: Referral and Consultation
Evaluating Palliative Opportunities Across the Age Spectrum in Children and Adolescent Patients with Cancer
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Purpose: Adolescent patients with cancer experience unique stressors due to their developmental stage, with increased physical, emotional, and social distress. Palliative care (PC) serves an important role in pediatric cancer care. We examined “palliative opportunities,” or events during a patient’s cancer course where subspecialty PC would be warranted and compared opportunities between adolescents and younger…
Attitudes and practices of pediatric oncologists regarding palliative care consultation for pediatric oncology patients
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Objective: We sought to describe palliative care services available to children with cancer along with pediatric oncologists’ current and ideal practices of palliative care involvement in children with cancer. Design(s): A novel survey tool was administered via REDCap to attending pediatric oncologists in the United States. The survey remained open from June to September 2020.…
Customised pediatric palliative care: Integrating oncological and palliative care priorities
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Aim: To describe the experience involving the early introduction of palliative care (PC) in oncological patients treated within the paediatric oncology unit of the Istituto Nazionale Tumori of Milan and compare this cohort with a cohort of patients resident in the same area treated before the introduction of early palliative care. Method(s): A virtual team…
Pediatric Palliative Care Education Model in Low Resource Settings: A Mixed-Methods Evaluation
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CONTEXT: Globally, approximately 21.6 million children need pediatric palliative care (PPC). The greatest burden lies in low- and middle-income countries, where the demand for PPC exceeds available resources. OBJECTIVES: The objective of this study was to assess the impact of a PPC workshop on healthcare providers’ self-efficacy, comfort and confidence related to the provision of…
Perinatal Palliative Care Service: Developing a Comprehensive Care Package for Vulnerable Babies with Life Limiting Fetal Conditions
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Background: Perinatal Palliative Care provides comprehensive and holistic care for expectant and new parents, who receive a diagnosis of life-limiting fetal condition and opt to continue pregnancy and care for their newborn infant. Aim: To develop a service providing individually tailored holistic care during pregnancy, birth, postnatal and bereavement period. Methods: Following a baseline survey…
High rate of clinically unrecognized SARS-CoV-2 infections in pediatric palliative care patients
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Little is known about the frequency and clinical course of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infections in pediatric patients with severe comorbidities. In this prospective cross-sectional trial, the seroprevalence of SARS-CoV-2-IgG in patients with life-limiting conditions being treated by a large specialized pediatric palliative home-care team was determined. In order to gain insight…