MeSH: Terminal Care/og [Organization & Administration]
Changing Pediatric Hospice and Palliative Care Through Medicaid Partnerships
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Since its inception in 2010, the Concurrent Care for Children Provision of the Affordable Care Act has enabled seriously ill pediatric patients and their families to access comprehensive, supportive hospice services while simultaneously receiving ongoing treatment-directed therapies. Although this groundbreaking federal legislation has resulted in improvements in care for vulnerable pediatric patients, the implementation of…
Experiences at the End of Life From the Perspective of Bereaved Parents: Results of a Qualitative Focus Group Study
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BACKGROUND: Palliative care principles are known to support the experiences of children and their families throughout the illness trajectory. However, there is little knowledge of the parental perceptions of care delivered and gaps experienced by families receiving end-of-life care. We report the most helpful aspects of care provided during the end of life and identify…