MeSH: United States
Differences in characteristics of children with cancer who receive standard versus concurrent hospice care
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BACKGROUND: The provision of Section 2302 of the 2010 Patient Protection and Affordable Care Act (ACA) allowed pediatric patients who are enrolled in Medicaid to receive hospice care concurrently with curative treatment (i.e., concurrent hospice care). Because it is a relatively new model of care and very little is known about the characteristics of children…
Attitudes and practices of pediatric oncologists regarding palliative care consultation for pediatric oncology patients
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Objective: We sought to describe palliative care services available to children with cancer along with pediatric oncologists’ current and ideal practices of palliative care involvement in children with cancer. Design(s): A novel survey tool was administered via REDCap to attending pediatric oncologists in the United States. The survey remained open from June to September 2020.…
Changing Pediatric Hospice and Palliative Care Through Medicaid Partnerships
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Since its inception in 2010, the Concurrent Care for Children Provision of the Affordable Care Act has enabled seriously ill pediatric patients and their families to access comprehensive, supportive hospice services while simultaneously receiving ongoing treatment-directed therapies. Although this groundbreaking federal legislation has resulted in improvements in care for vulnerable pediatric patients, the implementation of…
Medication chart review at end of life of paediatric palliative patients
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AIM: This study aimed to review the use of medications in a paediatric palliative care (PPC) population during the last two weeks of life. METHODS: This is a retrospective observational cohort study that included 50 consecutive patients who were referred to KK Hospital PPC service from 2011 to 2015. Those who died after two weeks…
Parents’ experiences of care offered after stillbirth: An international online survey of high and middle-income countries
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Importance: Parents of children with severe neurological impairment (SNI) manage complex medication regimens (CMRs) at home, and clinicians can help support parents and simplify CMRs., Objective: To measure the complexity and potentially modifiable aspects of CMRs using the Medication Regimen Complexity Index (MRCI) and to examine the association between MRCI scores and subsequent acute visits.,…
Pediatric palliative care parents’ distress, financial difficulty, and child symptoms
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Importance: Pediatric palliative care treats patients with a wide variety of advanced illness conditions, often with substantial levels of pain and other symptoms. Clinical and research advancements regarding symptom management for these patients are hampered by the scarcity of data on symptoms as well as an overreliance on clinician report., Objective: To provide a detailed…