Collection: TPPCR

This is a test of the TPPCR library.

“Why Are we Giving up on my Brother?”-The Unmet Needs of the Adolescent Facing End-of-Life Care in a Sibling

Adolescence is a challenging time at baseline, and a sibling receiving end-of-life care can alter an adolescent’s life irrevocably. It is imperative for the medical team to understand the unique needs and perspectives of such an adolescent sibling. This in turn facilitates the anticipation of an adolescent’s grief response, and allows for parents to be Read more about “Why Are we Giving up on my Brother?”-The Unmet Needs of the Adolescent Facing End-of-Life Care in a Sibling[…]

Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study

Background: Children with severe neurologic impairment (SNI) regularly require major surgery to manage their underlying conditions. Anecdotal evidence suggests that children with SNI experience unexpected and persistent postoperative functional changes long after the postoperative recovery period; however, evidence from the perspective of caregivers is limited. The purpose of the study was to explore the functional Read more about Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study[…]

Research Priorities in Pediatric Palliative Care: A Delphi Study

Background Pediatric palliative care is increasingly recognized to be a specialized type of care requiring specific skills and knowledge, yet, as found in several countries, there is little available research evidence on which to base care. Objectives The goal of the project was to achieve consensus among palliative care practitioners and researchers regarding the identification Read more about Research Priorities in Pediatric Palliative Care: A Delphi Study[…]