↡↡ Crocker, et al.: Reducing barriers to parent participation in pediatric palliative care research (Letter)
Authors: Siden, H., Steele, R., Cadell, S.
Journal Information: (2015). Palliative Medicine
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↡↡ Effect of pediatric palliative care programs on health care resource utilization and costs among children with life-threatening conditions: a systematic review of comparative studies
Authors: Conte, T., Milton, C., Trenaman, L. M., Chavoshi, N., Siden, H.
Journal Information: (2015). Canadian Medical Association Journal (CMAJ)
Pediatric palliative care is a relatively new and evolving field, and the cost of pediatric palliative care programs is unclear. We conducted a systematic review to compare inpatient health care utilization and costs among children with life-threatening conditions who have accessed a pediatric palliative care program and those who have not.
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↡↡ Challenging neurological symptoms in paediatric palliative care: An approach to symptom evaluation and management in children with neurological impairment
Authors: Rasmussen, LA; Grégoire, M-C
Journal Information: (2015). Journal of Pediatrics and Child Health
Neurological symptoms are very common in children with life-limiting conditions and are challenging in terms of burden of illness. Moreover, neurological symptoms can significantly impact the child’s quality of life and contribute to distress among parents, families, caregivers and health care providers. Knowing how to manage and alleviated these symptoms is essential for providing good palliative care. In the present article, the more common neurological symptoms of agitation/irritability, spasticity and dystonia will be reviewed.
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↡↡ Enhancing the quality of palliative care for children with cancer: A nation-wide train-the-trainer educational initiative
Authors: Widger, K; Bouffet, E; Freidrichsdorf, S; Greenberg, M; Husain, A; Liben, S; Pole, JD; Siden, H; Whitlock, J; Wolfe, J; Rapoport, A
Journal Information: (2015). Journal of Pediatrics and Child Health
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↡↡ Charting the territory: Children and families living with progressive life-threatening conditions
Authors: Siden, H.; Steele, R.
Journal Information: (2015). Journal of Pediatrics and Child Health
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↡↡ Introducing a lexicon of terms for paediatric palliative care
Authors: Spicer, S; Macdonald, ME; Davies, D; Vadeboncoeur, C; Siden, H
Journal Information: (2015). Journal of Pediatrics and Child Health
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↡↡ Case 1: A primary care provider enhances family support in perinatal palliative care
Authors: Chamberlain, C; Spicer, S; daSilva Curiel, K
Journal Information: (2015). Journal of Pediatrics and Child Health
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↡↡ Case 2: A 10-year-old boy with leg pain and swelling
Authors: Doherty, M; Wheaton, L; Vadeboncoeur, C
Journal Information: (2015). Journal of Pediatrics and Child Health
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↡↡ Pediatric palliative care: There is always more we can do
Authors: Rapoport, A; Liben, S
Journal Information: (2015). Journal of Pediatrics and Child Health
The April 2015 issue of the Journal of Pediatrics and Child Health features articles addressing issues in pediatric palliative care. The authors provide a brief Editorial providing background on pediatric palliative care and issues pediatricians may face.
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↡↡ When parents say ‘more’ and health care professionals say ‘enough’
Authors: Davies, D; Mack, C
Journal Information: (2015). Journal of Pediatrics and Child Health
This article presents the case of a previously healthy young girl whose condition rapidly declines following a tonic-clonic seizure. The authors highlight considerations in the physician’s decision-making process when working with the girl’s parents to provide the best care for their child.
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